MUSIC playlists for Multiple Sclerosis

MS music playlist


I have found relation and comfort in these songs, you may too.

Ughh

Ugh. So hot, so nauseated because of the heat..... I'm wide awake physically, but my back hurts, and my body is exhausted, but getting comfortable with the iv in my arm seems impossible....

I started my IV steroids today, and eore of advice, do NOT drink chocolate milk after the fact... Nastiest shit everrrrr

Did I get the Multiple Sclerosis Diagnoses??

     I posted earlier about going to see the neurologist today regarding abnormal MRI results. She went over everything with me, showed me all of the images, and then told me that there was no doubt in her mind that I do, in fact, have MS. 

     What does this mean for me? Not a clue.... well, I should rephrase that. I know what it is, and what it does, but now that I have the diagnosis, I have loads more testing, another MRI, and 5 days of IV steroids. 

I've always been a fighter. This isn't going to stop me from living....

Then again..... I am still in shock. I feel emotionless, and on the verge of crying.... but my thoughts are not there. I will give an update when it finally kicks in....

Do I have multiple sclerosis?

Im sitting at my neurology appointment... and I'm antsy and anxious.... this is the first step if figuring out whats wrong with me...

Time to find out if I have MS....

Wait list....

I was scheduled an appointment in October with my neurologist to determine if I have MS (multiple sclerosis).... well, because I had been placed near the top of the wait list, I got a phone call yesterday evening telling me there was an opening on Monday.... I no longer have to wait 4 months to know about my abnormality in my head MRI.

Yay wait lists!!!

Hypermobility... what does it look like?

How am I hypermobile? Check it out...

Hypertension of my knees at more than 10°

Hypertension of my knees of more than 10°

Hands flat on the floor, knees straight.

Butterfly stretch, legs and knees are on the floor.

Hypertension extension of my fingers, and toes.

Find a Cure

I have decided to start a fundraiser to help find a cure.

Please donate, and share.

https://www.crowdrise.com/findacureforeds



Thanks!

Crack, snap, pop....

The brief relief I get upon waking up and stretching... followed only seconds later with extreme pain.

Every morning, I wake up, I stretch, and automatically my joints in my shoulders, wrists, fingers, knees, and ankles pop back into position. My hip is subluxated and I have to have my fiancee help me put it back in.

Yet, for the longest time, the doctors swore up and down that nothing was wrong with me. At least in my quick spiral down hill, they are finally looking for my answers right along with me.


On a side note, does anyone know of a good place to get finger braces?

Insomnia Rules My Life-Rant

I sit here, alone, in the silence of my apartment, everyone is asleep- even the cats. Every single night, I sit awake, fighting for my mind to shut off. Tonight, I am fighting with depression. I just want to know what's wrong with me. I want to feel normal again. I want answers. I feel like hell for allowing my fiancee to be the sole provider for our family. For barely scrapping by. I wish I could go back to work, but my body simply won't allow it... and I am unable to file for disability assistance until I know whats wrong. Life seriously sucks sometimes.....

But I gotta keep keeping on, and I can't let myself forget that it can't rain forever.


I have insomnia, I have a prescription for sleeping pills, but I refuse to take them because I am left feeling like a zombie for days at a time.

I know I can pull through the depression, but I would give anything for answers...

Symptom Chart

Vitamin D3

Hey guys, time for an update already....

     So, I already knew that I had a vitamin D deficiency, but wow. I would of never thought it was as low as it was. I went in for blood work, and got a phone call this morning saying that my vitamin D levels were dangerously low, and I needed to get to the pharmacy ASAP to get my prescription.'

I hopped online after getting home, and I checked my charts. ( I have an E-portal to view my documents.) Vitamin D levels are supposed to be between 30.0 and 100.0, mine was sitting at a puny 18.4- the lowest it has ever been. I just cannot seem to catch a break, its just one thing after another.

Any Zebras have low vitamin d levels??

Introduction

Hi! My name is Amber, and I am 24 years old.

Am I a Zebra has been created to track my journey to find out what is wrong with me. I believe I have EDS type 3. Ehlers Danlos Syndrome Hypermobility Type.

Lets first begin with telling you guys my current diagnosis and the things I am in the process of being tested for.

• I was diagnosed with an "extra" vertebrae, (L6-S1) It inst technically extra, because it is supposed to be there, however it never fused to my sacral (tail bone), so they classified it as extra. 
• I was diagnosed as hypermobile, meaning that all of my joints have more of a range of motion than most people. Some people call it double jointed. My thumbs can touch my wrists, my knees hyper extend more than 10 degrees, I can bend over and put my hands flat on the floor without bending my knees, I can get my knees to touch the ground when sitting cris-cross-applesauce. 
• I have been diagnosed with a constant vitamin D deficiency. 
• I have an appointment with Rheumatology in September to test for EDS.
• I have an appointment with Neurology in October to test for M.S (Multiple Sclerosis).

I have been experiencing numerous symptoms of EDS.

• Chronic Pain (mainly in my lower back, but it effects everywhere).
• Hypermobility
• Easily Bruised (my fiancee likes to joke with me about this, he tells me that I can get a bruise just by looking in the mirror).
• Frequent subluxation and dislocations. (Mainly in my right hip, but have occurred in my shoulders, elbows, fingers, and ankles.)
• My skin has more elasticity than most. Especially in my hands. 
• I have horrible veins, they roll, and they are tiny. Taking blood is always a challenge.
• Persistent tiredness.
• Varicose veins.
• Very poor healing times. I can get a cat scratch, and it lasts about  month.
• I am never hungry, I have to force myself to eat, yet I still gain weight like crazy.

So... if you are a zebra, and have any tips or suggestions, please let me know. Anything helps.