Am I a Zebra has been created to track my journey to find out what is wrong with me. I believe I have EDS type 3. Ehlers Danlos Syndrome Hypermobility Type.
Lets first begin with telling you guys my current diagnosis and the things I am in the process of being tested for.
- I was diagnosed with an "extra" vertebrae, (L6-S1) It inst technically extra, because it is supposed to be there, however it never fused to my sacral (tail bone), so they classified it as extra.
- I was diagnosed as hypermobile, meaning that all of my joints have more of a range of motion than most people. Some people call it double jointed. My thumbs can touch my wrists, my knees hyper extend more than 10 degrees, I can bend over and put my hands flat on the floor without bending my knees, I can get my knees to touch the ground when sitting cris-cross-applesauce.
- I have been diagnosed with a constant vitamin D deficiency.
- I have an appointment with Rheumatology in September to test for EDS.
- I have an appointment with Neurology in October to test for M.S (Multiple Sclerosis).
I have been experiencing numerous symptoms of EDS.
- Chronic Pain (mainly in my lower back, but it effects everywhere).
- Hypermobility
- Easily Bruised (my fiancee likes to joke with me about this, he tells me that I can get a bruise just by looking in the mirror).
- Frequent subluxation and dislocations. (Mainly in my right hip, but have occurred in my shoulders, elbows, fingers, and ankles.)
- My skin has more elasticity than most. Especially in my hands.
- I have horrible veins, they roll, and they are tiny. Taking blood is always a challenge.
- Persistent tiredness.
- Varicose veins.
- Very poor healing times. I can get a cat scratch, and it lasts about month.
- I am never hungry, I have to force myself to eat, yet I still gain weight like crazy.
So... if you are a zebra, and have any tips or suggestions, please let me know. Anything helps.
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