So, by the way the test results went, I have to go down to Seattle Swedish again in December for more testing. They are going to do the insulin tolerance test. The test is to find out if I have Adult Growth Hormone deficiency. In order to do that, I have to fast from 10pm the night before. They will be lowering my blood sugar to the point of me sweating and being confused.
Also, I'm severely vitamin D deficient. My level is supposed to be above 60, and it was 17.5, so now I get to take 50,000iuc a week, plus another 2,000 a day. Yikes.
I'm still waiting to hear if I need an ultrasound to test for gallstones, even though I have no gallbladder.
Well, I think that's all for now...
I'm Amber. 26 yrs old. I have two girls (4 and 7) who are a handful, but keep me on my feet. I haven't worked in over a year due to severe back pain, which as still gone "unknown" according to my doctors. I was diagnosed with MS on 06/29/15. I also have been diagnosed with mild scoliosis, beginning of disc degeneration, a "rare" L6 vertebrae, hypothyroidism, diabetes inspidius, IgG4, fibromyalgia, & hypermobility. You can find me on Instagram: Spoonie.Amber
Wednesday, October 26, 2016
Wednesday, October 12, 2016
Clearer Results....
I have to go in for more blood work.
They're mailing me the lab slip. My liver levels were very high, and they think I may have gallstones. So, if my levels come back high again, they're gonna do an ultrasound. ..... mind you, they already stole my gallbladder.
Also, I might have a weird adult growth hormone deficiency, so I have to go to Swedish at some point and they're gonna put an I've in each arm. One for fluids, the other for injecting me with incilin to severely drop my blood sugar levels. They'll be taking blood over 2 hrs and if the levels don't rise to a certain number, I have this deficiency. If I have it... I'll have to start taking daily injections into my stomach for 8-12 weeks. Mind you needles terrify me.
Oh. And they had to up my thyroid medication.
Here are all the levels and what the Doc had to say...
Ref. Range 9/27/2016 12:50 9/27/2016 13:20
SODIUM Latest Ref Range: 134-144 mmol/L 142
POTASSIUM Latest Ref Range: 3.5-5.2 mmol/L 4.2
CHLORIDE Latest Ref Range: 97-108 mmol/L 104
TOTAL CO2 Latest Ref Range: 18-29 mmol/L 24
ANION GAP Latest Ref Range: 5-19 mmol/L 14
UREA NITROGEN Latest Ref Range: 6-20 mg/dL 3 (L)
CREATININE Latest Ref Range: 0.57-1.00 mg/dL 0.73
EGFR Latest Ref Range: >59 mL/min 113.66
EGFR (BLACK) Latest Ref Range: >59 mL/min 131.73
GLUCOSE Latest Ref Range: 65-99 mg/dL 105 (H)
CALCIUM Latest Ref Range: 8.7-10.2 mg/dL 9.5
BILIRUBIN, TOTAL Latest Ref Range: 0.1-1.2 mg/dL 0.7
ALT (GPT) Latest Ref Range: 0-32 U/L 80 (H)
AST(GOT) Latest Ref Range: 0-40 U/L 59 (H)
ALK PTASE Latest Ref Range: 39-117 U/L 94
PROTEIN, TOTAL Latest Ref Range: 6.0-8.5 g/dL 7.1
ALBUMIN, S Latest Ref Range: 3.5-5.5 g/dL 4.4
GLOBULIN Latest Ref Range: 1.5-4.5 g/dL 2.7
A/G RATIO Latest Ref Range: 1.1-2.5 1.6
TSH Latest Ref Range: 0.450-4.500 uIU/mL 4.400
THYROXINE,FREE Latest Ref Range: 0.82-1.77 ng/dL 0.99
FSH,SERUM Latest Ref Range: See Notes mIU/mL 7.2
PROLACTIN Latest Ref Range: 4.8-23.3 ng/mL 10.56
LH,SERUM Latest Ref Range: See Notes mIU/mL 6.3
CORTISOL Latest Ref Range: See Notes ug/dL 16.0 24.3 (H)
ACTH,INTACT Latest Ref Range: 7.2-63.3 pg/mL 38.3
IGF-1 (ENDO) Latest Ref Range: See Notes ng/mL 61
IGG QUANT Latest Ref Range: 700-1600 mg/dL 1107
IGG 1 Latest Ref Range: 422-1292 mg/dL 515
IGG 2 Latest Ref Range: 117-747 mg/dL 454
IGG 3 Latest Ref Range: 41-129 mg/dL 85
IGG 4 Latest Ref Range: 1-291 mg/dL 70
SODIUM Latest Ref Range: 134-144 mmol/L 142
POTASSIUM Latest Ref Range: 3.5-5.2 mmol/L 4.2
CHLORIDE Latest Ref Range: 97-108 mmol/L 104
TOTAL CO2 Latest Ref Range: 18-29 mmol/L 24
ANION GAP Latest Ref Range: 5-19 mmol/L 14
UREA NITROGEN Latest Ref Range: 6-20 mg/dL 3 (L)
CREATININE Latest Ref Range: 0.57-1.00 mg/dL 0.73
EGFR Latest Ref Range: >59 mL/min 113.66
EGFR (BLACK) Latest Ref Range: >59 mL/min 131.73
GLUCOSE Latest Ref Range: 65-99 mg/dL 105 (H)
CALCIUM Latest Ref Range: 8.7-10.2 mg/dL 9.5
BILIRUBIN, TOTAL Latest Ref Range: 0.1-1.2 mg/dL 0.7
ALT (GPT) Latest Ref Range: 0-32 U/L 80 (H)
AST(GOT) Latest Ref Range: 0-40 U/L 59 (H)
ALK PTASE Latest Ref Range: 39-117 U/L 94
PROTEIN, TOTAL Latest Ref Range: 6.0-8.5 g/dL 7.1
ALBUMIN, S Latest Ref Range: 3.5-5.5 g/dL 4.4
GLOBULIN Latest Ref Range: 1.5-4.5 g/dL 2.7
A/G RATIO Latest Ref Range: 1.1-2.5 1.6
TSH Latest Ref Range: 0.450-4.500 uIU/mL 4.400
THYROXINE,FREE Latest Ref Range: 0.82-1.77 ng/dL 0.99
FSH,SERUM Latest Ref Range: See Notes mIU/mL 7.2
PROLACTIN Latest Ref Range: 4.8-23.3 ng/mL 10.56
LH,SERUM Latest Ref Range: See Notes mIU/mL 6.3
CORTISOL Latest Ref Range: See Notes ug/dL 16.0 24.3 (H)
ACTH,INTACT Latest Ref Range: 7.2-63.3 pg/mL 38.3
IGF-1 (ENDO) Latest Ref Range: See Notes ng/mL 61
IGG QUANT Latest Ref Range: 700-1600 mg/dL 1107
IGG 1 Latest Ref Range: 422-1292 mg/dL 515
IGG 2 Latest Ref Range: 117-747 mg/dL 454
IGG 3 Latest Ref Range: 41-129 mg/dL 85
IGG 4 Latest Ref Range: 1-291 mg/dL 70
Amended assessment:
- Electrolytes are within normal limits. Can remain on DDAVP 0.1 mg at night plus 0.05-0.1 mg PRN.
- LFTs show raised AST and ALT, previous Hx of gallstones, recommend rpt LFTs and if AST and ALT still raised, will need US scan of liver and biliary tract.
- Free T4 low normal and TSH high normal, to increase dose of Levothyroxine to 125 mcg a day, script made.
- Prolactin is within normal limits.
- IgG subclasses all normal.
- IGF-1 is low suggestive of adult GHD, recommend ITT to confirm adult GHD.
- ACTH and cortisol are normal = normal HPA axis. Can remain off Hydrocortisone.
- Electrolytes are within normal limits. Can remain on DDAVP 0.1 mg at night plus 0.05-0.1 mg PRN.
- LFTs show raised AST and ALT, previous Hx of gallstones, recommend rpt LFTs and if AST and ALT still raised, will need US scan of liver and biliary tract.
- Free T4 low normal and TSH high normal, to increase dose of Levothyroxine to 125 mcg a day, script made.
- Prolactin is within normal limits.
- IgG subclasses all normal.
- IGF-1 is low suggestive of adult GHD, recommend ITT to confirm adult GHD.
- ACTH and cortisol are normal = normal HPA axis. Can remain off Hydrocortisone.
Wednesday, October 5, 2016
Test Results and More
As some of you may remember, back on the 27th of this month, I went to see my Endocrinologist and I told him of my complete and utter physical and mental exhaustion I have been experiencing lately. He seemed pretty concerned, and He decided to run a bunch of labs and a cortisol test, he also wants a copy of the MRI I get today.
Over the last week or so, I have been getting lab results trickling into my online charts. Most of them are normal, but there's a few that are low and even more that are way to high. I wont lie, it has me very nervous.
So, on this lab result, the following are:
My Urea Nitrogen is low. I was a 3mg/dL when normal is 3-20mg/dL
Urea Nitrogen: The blood urea nitrogen (BUN test) is primarily used, along with the creatinine test, to evaluate kidney function in a wide range of circumstances, to help diagnose kidney disease, and to monitor people with acute or chronic kidney dysfunction or failure (source was Lab Tests Online)
My ALT(GPT) was EXTREMELY high. I was 80U/L and normal is 0-32UL
MY AST (GOP) was also high, I was 59U/L and normal is 0-40UL
The ALT: Its usually used to detect liver injury. Its often in conjunction with the AST(mine was also high) to diagnose in liver disease. When the liver is damaged, ALT is released into the blood which makes it useful to test for early detection of liver damage. AST and ALT are considered to be 2 of the most important tests to detect liver injury, although ALT is more specific to the liver.
*Note* My sodium levels are always on the high end of everything because of the diabetes insipidus and how it causes dehydration.
My IFG-1 (ENDO) was super low. My value was 61 ng/mL and normal for my age is 87-368 237
IFG-1: Its an insulin-like growth factor. Since my values are low, its likely there is a GH deficiency or an insensitivity to GH. Reduced pituitary function could likely be caused from the pituitary tumor I had surgically removed. (trauma). Decreased levels may also be seen with anorexia, chronic kidney or liver disease.
So, over all... if you cannot tell yet, I am worried as all hell about the possibility of liver disease. I am still waiting for the phone call from my Endocrinologist.
I will post the results of my MRI within the next couple of weeks. I have an appointment on the 19th with my Neurologist.
Over the last week or so, I have been getting lab results trickling into my online charts. Most of them are normal, but there's a few that are low and even more that are way to high. I wont lie, it has me very nervous.
My Urea Nitrogen is low. I was a 3mg/dL when normal is 3-20mg/dL
Urea Nitrogen: The blood urea nitrogen (BUN test) is primarily used, along with the creatinine test, to evaluate kidney function in a wide range of circumstances, to help diagnose kidney disease, and to monitor people with acute or chronic kidney dysfunction or failure (source was Lab Tests Online)
My ALT(GPT) was EXTREMELY high. I was 80U/L and normal is 0-32UL
MY AST (GOP) was also high, I was 59U/L and normal is 0-40UL
The ALT: Its usually used to detect liver injury. Its often in conjunction with the AST(mine was also high) to diagnose in liver disease. When the liver is damaged, ALT is released into the blood which makes it useful to test for early detection of liver damage. AST and ALT are considered to be 2 of the most important tests to detect liver injury, although ALT is more specific to the liver.
*Note* My sodium levels are always on the high end of everything because of the diabetes insipidus and how it causes dehydration.
My IFG-1 (ENDO) was super low. My value was 61 ng/mL and normal for my age is 87-368 237
IFG-1: Its an insulin-like growth factor. Since my values are low, its likely there is a GH deficiency or an insensitivity to GH. Reduced pituitary function could likely be caused from the pituitary tumor I had surgically removed. (trauma). Decreased levels may also be seen with anorexia, chronic kidney or liver disease.
So, over all... if you cannot tell yet, I am worried as all hell about the possibility of liver disease. I am still waiting for the phone call from my Endocrinologist.
I will post the results of my MRI within the next couple of weeks. I have an appointment on the 19th with my Neurologist.
Tuesday, October 4, 2016
Social Media Accounts
Feel free to follow me on any or all of the following!!!!!
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| Kittin831 |
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| Kittyqatz |
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| Spoonie.Amber |
Saturday, October 1, 2016
Happy October
Happy 1st day of Halloween!!!
Halloween is the absolute best part of any year for me. I love the smells, the horror films, the creepy and the scary... And I can go out looking like shitty hit the fan, and no one looks twice at me. But the again, it's so much fun to take the day to do scary mare up on my children, friends, and myself...
It's the month of pumpkin spice everything, crisp air, Apple cider, pumpkin carving, black cats, sweaters, boots and slippers.... it makes so much less stress for this spoonie. Other than my 3 currently scheduled appointments, I feel this is going to be a good month.
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