After being stuck in the hospital for a week, I quit smoking. Today marks just over 3 months. I also saw my neurologist today. I just began my medication for MS. Gilenya. WHo else is on it? Has it helped you?
I have to go ssee my eye doctor like every 3 months, and she scheduled my MRIfor another 6 months out. She was super happy to hear I quit smoking. She is also letting me stop taking the toparimate I have been on for migraines.
Other than that, all is about the same as always Spoons are limited and Ihave to force myself to stay positive... But I am doing it.
I'm Amber. 26 yrs old. I have two girls (4 and 7) who are a handful, but keep me on my feet. I haven't worked in over a year due to severe back pain, which as still gone "unknown" according to my doctors. I was diagnosed with MS on 06/29/15. I also have been diagnosed with mild scoliosis, beginning of disc degeneration, a "rare" L6 vertebrae, hypothyroidism, diabetes inspidius, IgG4, fibromyalgia, & hypermobility. You can find me on Instagram: Spoonie.Amber
Tuesday, March 29, 2016
Wednesday, March 23, 2016
Post Surgery Check Up
So, today I had my 6 week check up. All is looking good.
However, I have Diabetes Inspidus for keeps. I also have something uper dooper rare (Hey, I am officially a Zebra) called IGg4. They found it wehn they biopsied the stuff they pulled from my brain. I guess I am only 1 in like 40 people world wide. The endocrinologist said he wants to do a case study on me and publish it. He also wants me to go in for a CT in the next couple of months to see if Imight have it other places showing as masses or tumors or whatever. And the nuerosurgen said he wants me to have another MRI around October...
I will be returning to the offices in a few months... Hoping all stays well.
However, I have Diabetes Inspidus for keeps. I also have something uper dooper rare (Hey, I am officially a Zebra) called IGg4. They found it wehn they biopsied the stuff they pulled from my brain. I guess I am only 1 in like 40 people world wide. The endocrinologist said he wants to do a case study on me and publish it. He also wants me to go in for a CT in the next couple of months to see if Imight have it other places showing as masses or tumors or whatever. And the nuerosurgen said he wants me to have another MRI around October...
I will be returning to the offices in a few months... Hoping all stays well.
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